Resources & Get Involved
We fundamentally reject the model of "intellectual neo-imperialism," where technologies are developed in the Global North and exported to the Global South without considering local material realities or community knowledge. We also believe that research should never be extractive.
To ensure our project leaves a sustainable, emancipatory legacy, we are making our entire Co-Creation Futures methodology, datasets, and policy frameworks open-source and publicly accessible. We invite researchers, developers, and advocates globally to download our resources, adapt our tools, and join us in dismantling systemic disablism in healthcare.
Downloads: The Open-Source Library
1. The Academic Foundation: Tier-1 Publications
Dive into the rigorous, peer-reviewed science behind our methodology. These papers outline our transition from "research on" disabled people to "research with" them:
Paper 1: Overcoming Epistemic Injustice & Decolonial Curation
Details our "Discovery" phase, exploring how we mapped the harms of the speech-locked clinic and restored epistemic authority to the Deaf community.
DownloadPaper 2: Speculative Prototyping & AI Architecture
Explores our "Co-Conception" phase, outlining how we used speculative scenario cards to stress-test the AI against infrastructure collapse (like network drops) and surveillance risks.
DownloadPaper 3: Anticipatory Governance and the Construction of "Crip Space"
Details the "Adoption & Governance" phase, proving how our community-defined rules reshaped Makerere University's institutional policies to create an environment where disability is celebrated, not cured.
Download2. The Open-Source USL Medical Lexicon
Dataset & Dictionary Access
Download the community-validated Ugandan Sign Language (USL) medical dictionary and dataset used to train our AI. This dataset includes the culturally vetted signs for infectious disease screening (like HIV, TB, and malaria) and the crucial "Danger Sign" visual vocabulary, completely bypassing Western medical standards that were deemed culturally stigmatizing.
3. Policy Briefs for Hospital Administrators
The Inclusive Diagnostics Blueprint
A step-by-step policy brief for healthcare providers and Ministry of Health officials. It includes actionable guidelines on how to establish a Diverse Disability User Committee with procurement veto power, and how to legally mandate the "Two-Sense Rule" (ensuring all critical clinic alarms and queue calls use at least two sensory modalities, such as visual and tactile).
Download Policy BriefOur Partners & Co-Creators
This socio-technical transition would not be possible without the profound collaboration between academia, public health sectors, and the unwavering advocacy of Disabled People's Organizations (DPOs), who hold the collective experiential knowledge needed to advocate for systemic change.
Makerere University
The institutional home for our research, clinic simulations, and structural policy transitions.
🇺🇬 Uganda Ministry of Health
Partnering to ensure our infectious disease protocols align with national screening guidelines.
NUDIPU
National Union of Disabled Persons of Uganda. An essential DPO partner ensuring that our governance frameworks hold the state and institutions accountable.
UNAD
Uganda National Association of the Deaf. Providing the critical linguistic expertise, community mobilization, and cultural validation required to build the USL dataset.
Funding Partners
Adapt Our Methodology in the Global South
Are you a researcher, technologist, or advocate working in a resource-constrained or fragile context?
The Co-Creation Futures framework was built to be scalable. Whether you are developing assistive mobility tools, translating distinct local sign dialects, or building digital health platforms, our methodology can help you prevent the creation of useless "disability dongles" and ensure you do not inadvertently push marginalized communities into a "techno-poor" underclass.
We want to help you adapt our framework to your local context. By prioritizing local knowledge and adopting our "twin-track" approach to inclusive design, your institution can shift from external dependency to building rights-based, community-governed technology.
Join a global network of practitioners committed to emancipatory, community-led technology design.
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